I am trying not to be disappointed. After all, medical issues are such a deeply personal subject ...
Perhaps Steven Cojocaru disclosed as much as he could. Perhaps it was a giant leap of faith just for him to speak the words "Polycystic Kidney Disease." I just can't relate. PKD is not an STD. Why would you not want to educate as many people as possible about a disease that you share with millions of other people.
For what it's worth, he comes across as a very kind, charming individual. I don't believe he is being malicious or unkind. However, his appearance on Dr. Phil felt more like an attempt to sell his book "Glamor Interrupted" than an opportunity to talk about his experiences with PKD. And that, quite frankly, is disheartening.
For those of us familiar with PKD, Steven's interview leaves a lot to be desired. PKD is a very specific disease. Although everyone's experience is different, it generally progresses slowly. Some people have symptoms such as pain, blood in the urine, high blood pressure, and kidney stones. While some people never know they have it and eventually die of something totally unrelated to PKD.
So ... what was Steven story? He basically said he never went to the doctor, felt fine, and when he finally went he was told he had PKD *and* needed a transplant. What led up to that appointment? Was he in pain? Did he have any symptoms? Did it run in his family? Because PKD is a hereditary condition ... a fact that, sadly, wasn't even discussed.
None of these things were talked about. I was really hoping he would share information about Polycystic Kidney Disease ... it's frustrating to me. Again, don't get me wrong ... medical issues are a very personal, private thing ... and he isn't required to tell the public anything.
There are quite a few people on Dr. Phil's message boards who posted their dissatisfaction with the episode ... one even went so far as to suggest "Cojo" should donate some of the proceeds of his book to PKD research. I wouldn't go that far. His money is his business and I'm sure he has medical bills just like the rest of us ... especially after two transplants. However, if you're going to go on Dr. Phil to share the story of your transplants with the world ... why not talk about the disease?
If you want more information about PKD, please go here. The bottom line is that Polycystic Kidney Disease (PKD) affects 600,000 Americans and 12.5 million children and adults, worldwide. There is no treatment or cure ... but there IS hope.
We need an advocate, and as Bob pointed out on a comment earlier, statistically there has to be a celebrity with PKD. Isn't there anyone who is willing to get out there and educate the public about the need for funding and research?
We leave only a mark
Will our story shine like a light
Or end in the dark
Give it all or nothing
Tina Turner - We Don't Need Another Hero